Thursday Update:
We are doing much better today. All the Glory to God.
Yesterday was hard.
We went into surgery around 5:00 pm yesterday evening to remove Amora’s port. She had been asking for cheese pizza since 4am that morning and we were so excited to give it to her after her surgery (since she couldn’t eat all day). As soon as they called us back we rushed in , pizza in hand, ready to have our girl back. We get into post-op and she’s still sleeping from anesthesia. The nurse at bedside talked to us about the surgery and how basically the port was sitting in a large pocket of infected fluid.
We raised the alarm on Sunday about her chest being red and swollen. So you’re telling me, my baby girl, who is immunocompromised, was fighting an infection since Sunday? It was Wednesday. I can’t believe we waited this long to remove the port. She was in pain this whole time and doctors kept saying they weren’t concerned because her vitals looked fine. That infection could have went septic. Thank you God for protecting our child.
We slowly start to wake her up from anesthesia, a sweet gentle motion with a Popsicle in hand. As soon as she sits up I noticed that she’s bleeding from her chest. The nurse quickly takes action. You could see the fear in her face. She calls the IR surgeon who LEFT THE HOSPITAL before even talking to us or making sure Amora was healthy post-op. There was no IR surgeon left at children’s. The doctor over the phone told the nurse to apply pressure for 10 minutes. A few other nurses came in to help. The blood didn’t stop. All Amora kept asking for was her cheese pizza.
I said we need the IR doctor here, what happens if she doesn’t stop bleeding? The nurse said, we are prepared, we have our trauma rooms and those doctors are always here… excuse me?? Trauma?? Dear lord please protect her. Our oncology doctor came down and came with a plan of action. It was terrifying. The IR surgeon who had left, turned around and was on her way back to the hospital. Thank God.
We had about ten total people helping Amora in the recovery bay. Two people holding pressure. A couple others getting platelet transfusions ready and the IR surgeon back to start a new IV for labs. My Amora was so strong. We promised her pizza afterwards but the nurse said that we should hold off from eating incase she has to go back into surgery. My poor girl.
The bleeding didn’t stop but it was a small ooze. They gave her more platelets, and more blood. they decided that she could eat and that the hope is for her platelets to get back to a level to help stop the bleeding. She was not expected to have to go back into surgery again. Thank you GOD.
Amora demolished her pizza. Kyle and I were a wreck. It’s God who has the final say and I had to remind myself that many times yesterday when I almost couldn’t take it. Gods got us.
This morning Amora was in a much better mood. Her blood work came back and confirmed no internal bleeding since her hemoglobin went up with the blood transfusion. Thank you God. The wound care team came in and took off her bandages and removed the long gauze that was inside her chest and replaced it with a new one. My baby girl is so strong. I truly can’t put into words how proud I am to be her mom. She is so amazing.
“You will not know the entire roadmap today. And even if you think you have it, it will most likely change. Simply do what is next. Seek to please Him with your today and He will make your tomorrow secure and successful.”
The Lord makes firm the steps of the one who delights in Him. - Psalm 37:23
Thank you for praying for us.
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