Back at children’s for our 3/5 treatment for this phase!
She’s doing great!
Her hair is growing back
She only gets nauseous a little bit with these medications … nothing some Zofran can’t help with. Next visit she will have her 2/2 lumbar puncture of this phase… WAHOO!! We keep getting closer to her maintenance date! She starts maintainance the week after Easter.
In maintenance she will take daily oral chemo and come in once a month for labs and heparin (keeps her line open) and then once every 3 months for LP and vincristine. She’ll do this until her End of Treatment date October 2025.
Since she’s still in treatment, any fever onset results in automatic ER visit. We are going to be diligent but we are absolutely ready to enjoy some fun adventures again.
Still hard to believe this is our life, but we are thankful ! God is good
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